The Young Face of Arthritis

Happy 1-week Birthday baby Santiago! I just want to thank all my friends and family for the constant prayers. During a routine check-up, Santiago was diagnosed with a very rare fetal tachyarrythmia with a heart rate of 250-280 beats per minute—which undiagnosed would have ended in catastrophe in 24 hours (and usually goes undocumented as a cause for stillbirth). After 36 hours of beta blockers, 3 specialists decided it was time for my 32-week old baby to come into this world and boy, were we relieved to hear him cry! After birth, the NICU team worked tirelessly to calm his racing heart and so far the treatment is working! There’s been a few setbacks, but overall he’s overcome so much and nurses say he’s feisty. This video was taken 48 hours after Santi was born when I got to meet him for the first time. :) Thank you to my family and friends who rushed over, drove and FLEW to take pictures of Santi when I couldn’t see him. I don’t know how I could have managed without all the visits by my bedside. ❤️

The Young Face of Arthritis

Recent Projects

Dr. Phil on RA + Pregnancy

WEGO Health Red Carpet Interview

Stephanie’s Story: WSVN 7 News

Writings

A Car Accident caused my RA Vengence

What I want people to know about RA.

The Support System – Loss & RA

October 2018
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