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It’s called "Conditioning"

I’ve conditioned myself to feel the most positive when I’m in the worst pain.
One day I just decided that when my pain is the worst, it’s my opportunity to dream
It’s a quiet time when I can dream about nothing else but the people I love and the things I love to do. I can dream of what my next adventure is going to be. Whether it’s traveling to Italy or redecorating our patio. 
I can plan what I’m going to do with my friends and family when I get better. I can pray in my heart for all the people affected by Chronic Illness and send them positive thoughts that say, “You will get better. One day.” Every time my bones feel like breaking I dream about all the beautiful things in the world and how I want to see them. I dream of these things and it helps me to keep my head held high. It’s called “conditioning”.
Tuscany Sunflower Fields

GROW: A Hobby I’m ABLE to Do

 I am definitely a hobbist! Ever since I was little, I’ve always been one to have several hobbies going at the same time. When I was 5, right before I got diagnosed with Juvenile Rheumatoid Arthritis I was really into gymnastics. Even at that age, I will never forget the disappointment that hit me when my Rheumatologist told me I’d have to quit. I remember protesting, “but I LOVE tumbling around doing cartwheels and round-offs!” 

How cute are these $1 kits from Target?

 That’s when he suggested I take piano lessons instead, knowing it would be good physical therapy and less pressure on my joints. My first day of lessons I learned how to play Mary had a little lamb, and I was SO proud! I kept learning and through the years I ended up taking voice lessons, clarinet lessons, violin lessons, art, drama, scrapbooking, you name it. Anything creative, I loved and by the time I got to high school I was doing as many hobbies and extracurriculars as my school schedule could handle. 
I did All-State Choir, I did Orchestra, I sang in Dinner Theatre, I even did a sculpture at Miami Beach Art Basel. Looking back now, it’s such an A-ha moment because I would’ve never found my love for the Arts if it hadn’t been for Arthritis

Baby booties I made last year
for my dear friend’s first grandchild
 Nowadays, my swollen hands make it impossible to do any of those things. Being disabled, I find it’s easy to get caught up in feelings of inadequacy, not to mention boredom. I mean, just think of the word! DISABLED It feels like it just labels me as “can’t-contribute-to-society.” 
It’s horrible! To me, that’s not living, that’s not thriving, that’s not anything. It’s just existing and what kind of life is that?  That’s why I find it so therapeutic to have a hobby to feel like I have goals and accomplishments! I just set a goal (i.e. I want to learn how to hem pants) and then practice and read and learn how to do it! (i.e. pants now hemmed by me!)
 Since having to sign up for disability, I’ve done crafting, crocheting, sewing, painting, and cooking. Not all my projects have come out amazing (or edible), but a few have come out pretty good. 🙂 Lately, however, with my hands getting worse, even these hobbies have become truly impossible. The joints in my hands just can’t do the movements necessary to do these things and when I try, they end up hugely swollen and painful for a week. 
Left: Tomato, Middle: Basil, Right: Another type of Tomato

But I can’t let that bring me down! I’ll just find a new hobby! Something that I am ABLE to do. So I’m going to try gardening. My in-laws are brilliant chefs and seeing as we spend so much money on herbs and veggies, I thought I’d try to save some money and have fun by planting my own! Hopefully the Florida heatwave doesn’t kill my plants, but if it does, what’s important is that I’m having fun learning something new. 

I’m not going to let being DIS-Abled prevent me from enjoying life. I’ll just find something that I am ABLE to do. Here’s to trying new things! 

Take a Closer Look at Rheumatoid Arthritis with Vectra DA

This test is unbelievable! For so long, people with RA have had to somehow describe to their doctor everything that they’re feeling. This test has changed that for me. Now, my doctor can actually SEE how active my disease is and better understand what I’m going through. It has brought me so much confidence in our doctor-patient relationship as well as helped keep track of what’s working and what’s not. I’m so grateful for this test! It’s truly been a lifesaver!
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