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BatKid Begins

Posted
July 29, 2014
Category
awareness, batkid, batman, chemotherapy, childhood disease, disability, disease, hero, hope, juvenile rheumatoid arthritis, kids
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To all the kids fighting childhood disease, you’re a HERO!

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Currently going through it #rheum #rheumatoidarthritis #arthritis #chronicpain #chronicillness #autoimmunedisease
We did it!! We kept a human baby alive for a whole year! 🤣 Santiago Joyce, you are such a joy. Worth the wait. Worth the struggle. We love you so much! ❤️ Thank you @trunkdax & Tía @anaromina for the adorable overalls!😍
Andres, Santi & I on Lifetime for #rheumatoidarthritis awareness!..Sometimes I get embarrassed and wonder what people from my high school will think of me when they see I didn’t turn out perfect and beautiful and successful like them. I got a disease, I’m not done with college yet, it took me 7 years to have a kid... then I remember I’m the tortoise, not the hare and because I have to do more with less, I’m 10x more appreciative of the little things in life than they ever will be.💜💙Link in bio!👆🏼👆🏼👆🏼
#tbt to Santi on the set of Dr Phil! Airs at 3 pm! Check your local listings!!! #rheum #RA #raawareness #rheumatoidarthritis
The truth is I thought I had come to terms with being diagnosed with an incurable, progressively disfiguring disease a long time ago. I considered my RA and I off the Ferris Wheel of denial, anger, bargaining and sadness. I had moved on to acceptance! . In a wheelchair, out of a wheelchair. With a cane, without a cane. Working a job, and “disabled.” I had learned to love myself and appreciate all the facets of ME with RA on the side. The good and the bad, my RA and me had a ying and yang. YAY! . Then I became a mother. . And a newfound hatred of this piece of crap disease began brewing inside me before I even had time to recognize it or nip it in the bud. Now, it’s bubbling to the surface in surprising tears I can’t hold back. . I was warned of the postpartum RA flare, told to prepare my support system, told to come up with a treatment plan with my doctor. And I did! . I did all of that, but the one thing I forgot to do was to prepare myself. . For the disconnection between my love and longing to hold my son and my stiff elbows and painful shoulders that won’t cooperate. . I forgot to forgive myself for not being a “perfect” mother and to ask my friends and family to remind me when I forget that there is no such thing… . I forgot to tell myself that people lie on Social Media. . That commercials that say “Moms don’t take sick days” are just Marketing to sell NyQuil, not truths. . And everyone has bad days, even moms without RA. . The truth is I’m still learning. I don’t have it all figured out. With every milestone I experience and every new obstacle I face, and every year that passes with this lifelong disease *eye roll..* I come closer to finding the reason I’ve been given this rather distasteful set of cards. . But like Rafiki from Lion King says… #rheumatoidarthritis #arthritis #jra #chronicpain #chronicilness #ra #rheum #juvenilearthritis #chroniclife #jia
This guy turned 11 months two weeks ago and it’s so sad! 😭He officially looks like a toddler and acts like one too.😆

Thanks for coming!

Thank you for visiting my blog. I am so happy you are here! I created this blog back in 2011 on tumblr because I felt there was a need for someone to talk about how chronic illness affects not just our bodies, but our souls as well. Always remember, this is a safe space for you to vent, scream, and be yourself. :)

<3 Steph

Copyright © 2019 Stephanie Aleite. All rights reserved.

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Currently going through it #rheum #rheumatoidarthritis #arthritis #chronicpain #chronicillness #autoimmunedisease
We did it!! We kept a human baby alive for a whole year! 🤣 Santiago Joyce, you are such a joy. Worth the wait. Worth the struggle. We love you so much! ❤️ Thank you @trunkdax & Tía @anaromina for the adorable overalls!😍
Andres, Santi & I on Lifetime for #rheumatoidarthritis awareness!..Sometimes I get embarrassed and wonder what people from my high school will think of me when they see I didn’t turn out perfect and beautiful and successful like them. I got a disease, I’m not done with college yet, it took me 7 years to have a kid... then I remember I’m the tortoise, not the hare and because I have to do more with less, I’m 10x more appreciative of the little things in life than they ever will be.💜💙Link in bio!👆🏼👆🏼👆🏼
#tbt to Santi on the set of Dr Phil! Airs at 3 pm! Check your local listings!!! #rheum #RA #raawareness #rheumatoidarthritis
The truth is I thought I had come to terms with being diagnosed with an incurable, progressively disfiguring disease a long time ago. I considered my RA and I off the Ferris Wheel of denial, anger, bargaining and sadness. I had moved on to acceptance! . In a wheelchair, out of a wheelchair. With a cane, without a cane. Working a job, and “disabled.” I had learned to love myself and appreciate all the facets of ME with RA on the side. The good and the bad, my RA and me had a ying and yang. YAY! . Then I became a mother. . And a newfound hatred of this piece of crap disease began brewing inside me before I even had time to recognize it or nip it in the bud. Now, it’s bubbling to the surface in surprising tears I can’t hold back. . I was warned of the postpartum RA flare, told to prepare my support system, told to come up with a treatment plan with my doctor. And I did! . I did all of that, but the one thing I forgot to do was to prepare myself. . For the disconnection between my love and longing to hold my son and my stiff elbows and painful shoulders that won’t cooperate. . I forgot to forgive myself for not being a “perfect” mother and to ask my friends and family to remind me when I forget that there is no such thing… . I forgot to tell myself that people lie on Social Media. . That commercials that say “Moms don’t take sick days” are just Marketing to sell NyQuil, not truths. . And everyone has bad days, even moms without RA. . The truth is I’m still learning. I don’t have it all figured out. With every milestone I experience and every new obstacle I face, and every year that passes with this lifelong disease *eye roll..* I come closer to finding the reason I’ve been given this rather distasteful set of cards. . But like Rafiki from Lion King says… #rheumatoidarthritis #arthritis #jra #chronicpain #chronicilness #ra #rheum #juvenilearthritis #chroniclife #jia
This guy turned 11 months two weeks ago and it’s so sad! 😭He officially looks like a toddler and acts like one too.😆
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RA is a part of me, but it doesn’t define me

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