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BatKid Begins

Posted
July 29, 2014
Category
awareness, batkid, batman, chemotherapy, childhood disease, disability, disease, hero, hope, juvenile rheumatoid arthritis, kids
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To all the kids fighting childhood disease, you’re a HERO!

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Merry Christmas 🎄 2019
As challenging as it is, nothing in my life has been more fulfilling than being a mother. He has an empathy I’ve never seen in a child so young. He’s beyond social and loves talking on the phone and even pretending to talk on the phone 😆. And he loves to share everything! Including food, favorite toys, etc! . . #rheumatoidarthritis #arthritis #chronicpain #chronicillness #chronicmom #invisibleillness #ra #jra #ja #juvenilearthritis #autoimmunedisease #spoonie #gastroparesis #vectrascore
Birthday dinner for mom.🎈 We drove 2 1/2 hours to Ft. Myers to have dinner with my brother and his new fiancée and the whole time my hip was hating it! Most of the time it baffles people why I can’t drive long distances. So let me explain: the “morning stiffness” + pain you hear associated with RA, for me happens after sitting for only an hour or two. And it’s not just in the car. It’s sitting in a classroom for two hours, going to the movie theaters, sitting in a car. I’m the real life tin-woman. . . #rheumatoidarthritis #arthritis #chronicpain #chronicillness #chronicmom #invisibleillness #ra #jra #ja #juvenilearthritis #autoimmunedisease #spoonie #gastroparesis #vectrascore #empowerwithvectra
I often struggle to find the balance between suffering in silence and sharing the inner struggle of life with #chronicillness. . Sometimes I find that my silence has perpetuated the belief in others that I’m feeling well, even when I’m not. But it isn’t in me to complain aloud or even dwell on the pain. . So, PSA 🗣 to friends and family of those dealing with #chronicillness: ASK before assuming. We might not share it all, but please know we’re grateful for the ear. :) #rheumatoidarthritis #arthritis #chronicpain #chronicillness #chronicmom #invisibleillness #ra #jra #ja #juvenilearthritis #autoimmunedisease #spoonie #gastroparesis
Meanwhile in Florida....😝❄️
1-100 What level are you on?? 😅 ⬇️comment below #rheumatoidarthritis #arthritis #chronicpain #chronicillness #chronicmom #invisibleillness #ra #jra #ja #juvenilearthritis #autoimmunedisease #spoonie #gastroparesis

Thanks for coming!

Thank you for visiting my blog. I am so happy you are here! I created this blog back in 2011 on tumblr because I felt there was a need for someone to talk about how chronic illness affects not just our bodies, but our souls as well. Always remember, this is a safe space for you to vent, scream, and be yourself. :)

<3 Steph

Copyright © 2019 Stephanie Aleite. All rights reserved.

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Merry Christmas 🎄 2019
As challenging as it is, nothing in my life has been more fulfilling than being a mother. He has an empathy I’ve never seen in a child so young. He’s beyond social and loves talking on the phone and even pretending to talk on the phone 😆. And he loves to share everything! Including food, favorite toys, etc! . . #rheumatoidarthritis #arthritis #chronicpain #chronicillness #chronicmom #invisibleillness #ra #jra #ja #juvenilearthritis #autoimmunedisease #spoonie #gastroparesis #vectrascore
Birthday dinner for mom.🎈 We drove 2 1/2 hours to Ft. Myers to have dinner with my brother and his new fiancée and the whole time my hip was hating it! Most of the time it baffles people why I can’t drive long distances. So let me explain: the “morning stiffness” + pain you hear associated with RA, for me happens after sitting for only an hour or two. And it’s not just in the car. It’s sitting in a classroom for two hours, going to the movie theaters, sitting in a car. I’m the real life tin-woman. . . #rheumatoidarthritis #arthritis #chronicpain #chronicillness #chronicmom #invisibleillness #ra #jra #ja #juvenilearthritis #autoimmunedisease #spoonie #gastroparesis #vectrascore #empowerwithvectra
I often struggle to find the balance between suffering in silence and sharing the inner struggle of life with #chronicillness. . Sometimes I find that my silence has perpetuated the belief in others that I’m feeling well, even when I’m not. But it isn’t in me to complain aloud or even dwell on the pain. . So, PSA 🗣 to friends and family of those dealing with #chronicillness: ASK before assuming. We might not share it all, but please know we’re grateful for the ear. :) #rheumatoidarthritis #arthritis #chronicpain #chronicillness #chronicmom #invisibleillness #ra #jra #ja #juvenilearthritis #autoimmunedisease #spoonie #gastroparesis
Meanwhile in Florida....😝❄️
1-100 What level are you on?? 😅 ⬇️comment below #rheumatoidarthritis #arthritis #chronicpain #chronicillness #chronicmom #invisibleillness #ra #jra #ja #juvenilearthritis #autoimmunedisease #spoonie #gastroparesis
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RA is a part of me, but it doesn’t define me

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