This was the beginning of a post Joe was writing for The Young Face of Arthritis, before his passing on August 30, 2019.
Joe was diagnosed at four years old with juvenile arthritis and though he wasn’t “young anymore” (as he put it), I felt Joe’s wisdom and raw, inspiring thoughts fully compassed what The Young Face of Arthritis means to me.
When I created this blog, I did so to talk about the emotional side effects to being young, disabled, and fabulous (as I call it..)! And Joe’s thoughts often inspired me to show more and explain more deeply how chronic pain not only affected my body, but my mind and soul as well.
You will be missed, my friend. Thank you for being so raw and open and sharing in my fears, hopes, questions, and desires for the future. And thank you for letting me share your legacy of finding purpose in a life with pain with our community.