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Reconciliation Part 1

I’ve talked about my rocky relationship with my parents before. Especially when it concerns my Arthritis

I’ve written about the day I got my first cane and my dad’s harsh judgement. 
It’s been really hard, not having my parents’ support or understanding. 
It never made me angry with them. More sad, that they couldn’t be there for me. 
Well, last week my mom had major surgery. A hysterectomy to be exact. 
I knew before what a hysterectomy was, so when my mom called me to tell me she’d be going in for surgery in two days, I knew of the difficult recovery she’d have to face. 
So when she got released from the hospital after a couple days, I drove over to my parents’ house, prepared to take care of her. 
I know she wasn’t expecting it, but to be honest, I knew I’d do it even before she asked. 
Not because it was my job as her daughter– she hadn’t taken care of me when I needed it most. 
Not because she deserved it- because she defintely didn’t.
Not even because I wanted revenge or to make her feel guilty– show her what she could’ve, but didn’t do for me. 
I did it because it’s the right thing to do and I always knew if the roles were reversed- which they now were– I would take care of someone who needed help. 

I’m not a stranger to needing help. Not one bit.
I’m a disabled, sick girl with Rheumatoid Arthritis
There’s so many things I can’t do on my own. There’s so many things I need help with day in and day out. 
So when someone else needs help, when someone is sick. I know. I know the feeling
I know what it feels to be in pain. To not be able to do things you can normally do.
That’s why I did what I did. That’s why I chose to take care of my mother when she was in pain, unable to bend over, unable to take a shower or wash her hair, unable to cook or clean or drive to the pharmacy. 
I did it because I know how it feels and because I know how it feels, I knew I could help her.

Medicare – The BEST 23rd Birthday Present

So, last week was my 23rd birthday and I got the greatest gift I could ask for. 
I got Medicare.

I haven’t had health insurance since May and for someone like me, it can be really stressful. Not knowing when I’ll be able to get my Orencia Infusion again. 
It is not easy. Especially when the treatments that give me back my ability to walk cost thousands upon thousands of dollars. Cha-ching! I don’t think so…!

Because I’ve been without Health Insurance, and therefore, my medication, I’ve felt my Arthritis slowly rearing its ugly head

Everyday without these drugs is a little worst than the day before. 

Luckily, I’ve still been able to do things I haven’t done in years, but even now, just two months without Orencia, I can’t sit in a chair for long periods of time anymore. I need to get up, move around, lay down, change positions because the stiffness in my spine and hips is so painful. I feel more of a difference in my extremities now, my wrists make it harder to write or even type on the computer. My toes are little swollen, painful sausages that make it difficult to sleep.

Even though I’m experiencing more of the regular ol’ Arthritis symptoms, 
I’m still incredibly grateful that I will be able see my Rheumatologis and get my treatments again soon. Without this 23rd birthday gift of Medicare 

(health insurance for old people and the Disabled) I wouldn’t be able to afford these treatments that keep me out of my wheelchair. 


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