Rheumatoid Arthritis Patients Say Treatment Lacks Goals And Guidelines
Wow, guys, this makes me so sad. This is why I started this blog. Not only to bring awareness to this disease but also to educate people with RA and give them hope. We need to speak up! We need to fight back! We need to get our confidence back and do something about this terrible illness!
I know its hard because sometimes we feel judged, misunderstood and that no one understands, but things have changed. We have tools now. We have the Vectra DA test (http://www.vectra-da.com/patients/how-vectra-works.php) which puts a verifiable number to RA disease activity. We have newer treatments being introduced all the time.
We can do this, guys! All we have to do is speak up!
So I bought these shoes and dubbed them my “Remission Shoes.”
Since I got married I’ve been struggling with the thought of my future. What is going to happen to me? When will my body say, “Enough is enough. I can’t take this anymore?” How many years do I have left of being able to walk normally 3 out of 7 days a week? 10? 15?
I talked to my husband Andres and expressed to him these feelings. You know what he said? He said to me, “I will never give up. I will never back down. I will never accept you as sick and say ‘Well, this is the way things are.’ I don’t accept it now, or ever. I will keep trying till the day you are in remission.”
With that I say, forget this disease! Forget planning for the grim future and assume that we are going to be like this forever. There is no cure, but there is a possibility of a remission! There is a possibility that 2014 will be the year there’s a breakthrough. I choose to believe in that possibility. I choose to stay positive. I choose to hope.
|Arthritis Walk 2013
So on Saturday I went to my very first Arthritis Walk!
I have been dying to go for years, but never could because I was either in the hospital or way too sick. 😦 Thanks to my dear friend Julie, my dad, and my brother Josh this year I was finally able to go and it was AWESOME!!
At first I was kind of hesitant because I knew I wouldn’t be able to do the actual walking, but my Support System was there pushing me in my wheelchair for 1.6 miles! I’m so grateful, I’m sure they were getting a hefty workout…lol.
We even got to raise money for Arthritis while we were walking using this app called ‘Zimmer.’ The three of us with iPhones downloaded the app and were able to raise $1 for each mile we walked/rode.
It was amazing seeing so many people supporting Arthritis Awareness and I had a fantastic time connecting with people in my community who either have arthritis or know someone who does. I even got to meet some Storm Troopers walking for a cure, cool huh?! 🙂
I can’t wait till next year when I plan on going again with more of my friends and family! It’s super fun and I highly recommend looking into walking and raising money for a great cause… (you can click on this link to find a walk in your area —> Walk to Cure Arthritis ) or just come with me! 😀
I started this blog for a reason. I wanted a purpose. A way to turn my negative situation into a positive. A way to share what I’ve learned with others. A place where I could talk to other people about what it’s like living with Rheumatoid Arthritis.
I’m here because I want to talk not just about how it affects me physically, but emotionally as well. I’m here to talk about how RA affects me as a wife, as a someday mother, as a sister, as a daughter. And how having all this physical pain changes my perspective. …That’s the thing with people like me… I feel our illnesses don’t just affect our bodies, but our souls as well.
Here’s to changing our perspectives!
If you agree.. let me know. 😉