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Patients Say Treatment Lacks Goals And Guidelines

Rheumatoid Arthritis Patients Say Treatment Lacks Goals And Guidelines

Wow, guys, this makes me so sad. This is why I started this blog. Not only to bring awareness to this disease but also to educate people with RA and give them hope. We need to speak up! We need to fight back! We need to get our confidence back and do something about this terrible illness! 
I know its hard because sometimes we feel judged, misunderstood and that no one understands, but things have changed. We have tools now. We have the Vectra DA test (http://www.vectra-da.com/patients/how-vectra-works.php) which puts a verifiable number to RA disease activity. We have newer treatments being introduced all the time. 

We can do this, guys! All we have to do is speak up!

Moon Face

What I look like on Prednisone. HAHA!
Moon face’ is a common side effect of a medication called Prednisone- a very effective corticosteroid anti-inflammitory drug commonly used by people with breathing disorders, arthritis, lupus, psoriasis, and allergic disorders. It is characterized by a swollen, round, often puffy-looking appearance in the cheeks of those who use it, resulting in the name.


Recently my doctor started me back on Prednisone. Half of me was thinking, “Oh great, here we go again and just in time for the holidays too…” but the truth is it does make me feel significantly better. I mean, I know in my head its worth feeling better, but the fact that I’ve looked like a chipmunk in the all the holiday pictures for the last 3 years does bother me a little. 
Often, people will ask me, “What happened to your face?” or “Did you know that your face is really swollen?” and I simply shrug and respond with “Yeahhh I’m aware, it’s the medication.” 
I mean, its hard! Especially when you know its going to be for an extended period of time. You feel self-conscious! It’s like all eyes are on you and you know that they know that something is off about your face, but they don’t know why. Although Arthritis can be classified as an invisible illness there definitely are times when it is very clearly visible and its easy to get depressed about it. 
You don’t feel like yourself and you just want to hide and not go to any of the Christmas dinners or New Year’s parties. I know I’ve felt like that a few times. 
I’ve felt ugly, and I didn’t want to go out or get my picture taken, but after hiding out alone in my room, I realized that that’s no way to live! I can’t waste Christmas time with my family just because I look a little funny. And if someone asks, I just explain it to them and make a joke about how I look like I have acorns stuffed in my cheeks or I ate one too many holiday-themed cookies

It’s ok to to be upset and I’m not saying you have to be happy about it, but sometimes we gotta learn to not take ourselves too seriously or let little things get in the way of us living our lives.
We just gotta say to ourselves, “This too shall pass and I am the cutest chipmunk in existence!” 🙂
That’s one thing that this illness has taught me over and over again…

“Don’t sweat the small stuff.”

CHRONICALLY Optimistic

This pain reminds me that I do have a purpose. 
I think it has to do with bringing people hope
If thoughts were letters and I had every sick, hurting, desperate, worried, hungry, sad, defeated person’s address it would say: 


“You are going to get better. One day the pain will disappear and you’ll get rest. You won’t feel the hurt and frustration you feel now. You won’t be confused and desperate for answers to why this happened in the first place! The sun will rise and these dark clouds will go away—but that’s not without effort. You do your best, you do what you can and leave the rest up to God. If not for your health (because laughter truly is the best medicine), but for your sanity. You have to believe it will get better and it will, I promise! I’m not saying this because I’ve been there and I’m now on the other side. I’m telling you this because I haven’t yet and I’m still waiting. I will never stop hoping and believing that my miracle is going to pick me up and I’m going to fly away into all the dreams I’ve ever had. I will never, ever give up. You see? You’ll get there too. Even if it has to be in Heaven. One day the pain will disappear and you’ll get peace.  Don’t worry, it will get better.” 

Arthritis Walk 2013

Arthritis Walk 2013

Hey guys! 

So on Saturday I went to my very first Arthritis Walk
I have been dying to go for years, but never could because I was either in the hospital or way too sick. 😦 Thanks to my dear friend Julie, my dad, and my brother Josh this year I was finally able to go and it was AWESOME!! 

At first I was kind of hesitant because I knew I wouldn’t be able to do the actual walking, but my Support System was there pushing me in my wheelchair for 1.6 miles! I’m so grateful, I’m sure they were getting a hefty workout…lol. 
We even got to raise money for Arthritis while we were walking using this app called ‘Zimmer.’ The three of us with iPhones downloaded the app and were able to raise $1 for each mile we walked/rode. 

It was amazing seeing so many people supporting Arthritis Awareness and I had a fantastic time connecting with people in my community who either have arthritis or know someone who does. I even got to meet some Storm Troopers walking for a cure, cool huh?! 🙂

I can’t wait till next year when I plan on going again with more of my friends and family! It’s super fun and I highly recommend looking into walking and raising money for a great cause… (you can click on this link to find a walk in your area —> Walk to Cure Arthritis ) or just come with me! 😀





This is Me


I started this blog for a reason.  I wanted a purpose.  A way to turn my negative situation into a positive. A way to share what I’ve learned with others.  A place where I could talk to other people about what it’s like living with Rheumatoid Arthritis.

I’m here because I want to talk not just about how it affects me physically, but emotionally as well.  I’m here to talk about how RA affects me as a wife, as a someday mother, as a sister, as a daughter.  And how having all this physical pain changes my perspective.  …That’s the thing with people like me… I feel our illnesses don’t just affect our bodies, but our souls as well. 
Here’s to changing our perspectives! 
If you agree.. let me know. 😉
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