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Tune into Dr.Phil Nov. 29th!

Last month I got the opportunity to be on the Dr. Phil show for Rheumatoid Arthritis awareness! It was an awesome once-in-a-lifetime experience and I feel so honored to put a different face to this invisible illness. Rarely do us in the chronic crew get the opportunity to share with the public how Arthritis affects us, so for that reason, I’d LOVE for YOU to share your face with @DrPhil on Twitter/Facebook/Instagram on November 29th with #RedefiningRA!

The segment airs November 29th, so tune in next Wednesday! For local listings, click here.  …SCROLL DOWN FOR VIDEO!13861109-E4AF-4CC7-A264-AEDAF908AF22.JPG

D is for Disabled

So, this is going to be embarrassing… Today I got my first D since 11th grade, second D ever.

In case you didn’t know, I’m in my Junior year of college majoring in Psychology and minoring in Statistics. And.. I love school. Always have. Not really the institution of it, but I do love learning and reading. When my RA came back at 17 after a remission in my teens, my schoolwork became the first casualty in what I like to call, “My RA vengeance.” I’ll never forget hobbling around on crutches, not being able to hold a pencil and vomiting in the trash can at the back of the class after being put on Methotrexate for the first time in my life. I dropped classes, abandoned classes, and the W’s racked up.

After everything I’d done–getting into the School for Advanced Studies (a dual-enrollment program) at 16 and graduating early, I dropped out of college in my second year. Truth be told, I took too long to drop out. I waited until I literally could not walk anymore and even showering became impossible. Looking back, I wish I had accepted my new reality sooner.

Fast forward to 2015, I started feeling better and I immediately enrolled at Miami Dade College. It felt amazing to be back to doing what I love and my grades reflected that. Being in school (and doing well) reminded me of who I used to be–energetic, zealous, and tenacious.

That all vanished the second I saw the D at the top of my test paper. I know I have been feeling really bad lately, but how is it that my grades are always the first to suffer?

I know my pain has been making it extremely difficult for me to focus in class and the fatigue has dwindled my motivation to study, but am I really making the same mistake all over again? I don’t know what to think–do I finish school the best I can or do I drop out now and salvage my 4.00 GPA? My biggest mistake before was not reaching out to the Disability Resource Center at my school as soon as I felt sick. In my defense though, I had no idea what was wrong with me and (naively) thought I’d get better in no time! This time, I learned from my denial. I contacted the DRC and I’ve communicated with my professors, but when they don’t know how to help me and I don’t know how to help myself (beyond asking for a scribe or dictation software), what else is a girl supposed to do? (BTW, the DRC doesn’t offer any help with typing or extensions on deadlines–I asked.)

I was so disappointed with myself and really felt like quitting until… I got these messages. Screen Shot 2017-11-20 at 3.48.45 PM.pngScreen Shot 2017-11-20 at 3.50.59 PM.png

Being a part of a community online and getting to know individuals who truly “get it,” means everything. Encouragement from so many people–friends, family, and my chronic clique–reminds me that even though I stumble, (often and awkwardly) the most important thing in life is that I pick myself back up. 🙂

WALK TO CURE ARTHRITIS #TEAMACHE

Walk to Cure Arthritis | 5K Walk Event | The Young Face of Arthritis #TeamACHE

It still astounds me when someone tells me they didn’t know that young adults and even kids could get Arthritis.

As most of you know by now, I was diagnosed with Juvenile Rheumatoid Arthritis in 1996 when I was just 5 years old. Now, I’m 26 years old, in college, married to the love of my life, and currently disabled because of my RA. Still, I’m determined not to let my disease stop me from achieving my dreams and hopes for the future. It may sound silly, but my biggest goal for a long time has been to get healthy enough to get a job! Some days I can do things almost like a normal person, but consistency is a really big obstacle for me. In 2012, I got laid off (from a job I loved! Management at Restoration Hardware) right after Enbrel stopped working for me. Since then, I’ve really struggled to find a treatment that works consistently well, has manageable side effects, and works for any length of time whatsoever. I’ve also been diagnosed with a few more diseases and syndromes while looking for my “miracle drug” including (but not limited to.. lol) Gastroparesis, Polycystic Ovarian Syndrome, chronic pain syndrome, and Cushing’s Syndrome. The last one is the most recent, actually being diagnosed last Monday…more on that later. *eye roll*

Although most people long for retirement, for me, working is something I miss dearly. I always say, mind is perfect, but my body can’t keep up and that is insanely frustrating. A CURE could help me accomplish this dream to be healthy, stable, and employed! 🙂

Arthritis is the #1 cause for DISABILITY in America today and contributes to approximately $80 billion in medical expenses and $47 billion in lost wages. The total cost to society in the United States is around 1.2% of the 2003 U.S. GDP. Donating today not only helps those of us suffering with Arthritis, but society as a whole. Millions of Americans trapped in their malfunctioning bodies could be contributing in cutting-edge fields such as mathematics, healthcare, science, technology, and business–if only we had better treatments or a CURE!
The money raised in this walk will be donated solely to research. PLEASE consider helping young folks like me hope for a cure!

*I joined the Arthritis Foundation’s Walk to Cure Arthritis to help the more than 50 million Americans and 300,000 children with arthritis live better today and to keep the Arthritis Foundation’s promise of finding a cure for tomorrow. Your support provides people with arthritis life changing resources and information to manage their disease and improves access to the critical medications they need to live full, healthy lives. The impact of your donation doesn’t stop today, it also helps fund cutting-edge research to identify better treatments and a cure. Written by the Arthritis Foundation

JOIN MY TEAM OR SPONSOR MY WALK @THE YOUNG FACE OF ARTHRITIS #TEAMACHE A.C.H.E stands for Arthritis Can Hit Everyone

First (sorta) blog post

Hi There!

I’m so glad you’re here. 🙂 My name is Stephanie Aleite and I’ve been blogging since 2011. At the time, I had been following some of the awesome veteran bloggers with RA like.. Hurtblogger, Britt Johnson. But I felt that something was missing… I wanted to read about someone who talked about the emotional side effects to being young and living with a chronic illness. I actually wanted to know how RA would affect me emotionally as a wife, a college student, and someday a mother…

So right after getting engaged, a friend of mine (thanks Adrianna!) suggested I start my own blog. I knew abosolutely nothing about blogging, but she suggested Tumblr and I got to writing right away. Never in a million years did I think anyone besides a couple close friends and my parents would read it. Nor did I think I’d still be doing it six years later! Recently, I relocated my blog from Blogger to WordPress-because they have an app and that’s so much easier for me because of my RA. But if you’d like to read more about my journey, feel free to keep reading below-posts which I imported from my old blog. Thanks for coming!

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