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The Young Face of RA with Dr. Decker Weiss: RadioMD

Posted
September 23, 2017
Category
Radio
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No more oxygen on my face and no more feeding tube! We’re working on consistency without support and crying for our food! We’re still not ready to ride in a car seat, but maybe in 48 hours, they’ll test again for car seat. #nicu
Yeah! I’m 1 month old today!!! And I graduated today out of the critical care unit #NICU!🌟Now we got our own little corner in a bigger NICU.
Happy 3-week birthday baby Santi! Yes, you are a “tough guy” — the toughest guy I know aside from your daddy who married into all this craziness and continues to happily deal with both of us. I miss you more than words when we’re not together, but don’t you worry, your tough mommy is making sure these doctors and nurses take excellent care of my precious little gem.💎
Praying with my baby boy for our Uncle Kevin, Titi Meghan, and cousins Kaleb & Kolton.🙏🏼💙#bluefamily “For where two or three are gathered together in my name, there am I in the midst of them.” -Matthew 18:20
Happy 1-week Birthday baby Santiago! I just want to thank all my friends and family for the constant prayers. During a routine check-up, Santiago was diagnosed with a very rare fetal tachyarrythmia with a heart rate of 250-280 beats per minute—which undiagnosed would have ended in catastrophe in 24 hours (and usually goes undocumented as a cause for stillbirth). After 36 hours of beta blockers, 3 specialists decided it was time for my 32-week old baby to come into this world and boy, were we relieved to hear him cry! After birth, the NICU team worked tirelessly to calm his racing heart and so far the treatment is working! There’s been a few setbacks, but overall he’s overcome so much and nurses say he’s feisty. This video was taken 48 hours after Santi was born when I got to meet him for the first time. :) Thank you to my family and friends who rushed over, drove and FLEW to take pictures of Santi when I couldn’t see him. I don’t know how I could have managed without all the visits by my bedside. ❤️
#selfcaresunday

Thanks for coming!

Thank you for visiting my blog. I am so happy you are here! I created this blog back in 2011 on tumblr because I felt there was a need for someone to talk about how chronic illness affects not just our bodies, but our souls as well. Always remember, this is a safe space for you to vent, scream, and be yourself. :)

<3 Steph

Copyright © 2017 Stephanie Aleite. All rights reserved.

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No more oxygen on my face and no more feeding tube! We’re working on consistency without support and crying for our food! We’re still not ready to ride in a car seat, but maybe in 48 hours, they’ll test again for car seat. #nicu
Yeah! I’m 1 month old today!!! And I graduated today out of the critical care unit #NICU!🌟Now we got our own little corner in a bigger NICU.
Happy 3-week birthday baby Santi! Yes, you are a “tough guy” — the toughest guy I know aside from your daddy who married into all this craziness and continues to happily deal with both of us. I miss you more than words when we’re not together, but don’t you worry, your tough mommy is making sure these doctors and nurses take excellent care of my precious little gem.💎
Praying with my baby boy for our Uncle Kevin, Titi Meghan, and cousins Kaleb & Kolton.🙏🏼💙#bluefamily “For where two or three are gathered together in my name, there am I in the midst of them.” -Matthew 18:20
Happy 1-week Birthday baby Santiago! I just want to thank all my friends and family for the constant prayers. During a routine check-up, Santiago was diagnosed with a very rare fetal tachyarrythmia with a heart rate of 250-280 beats per minute—which undiagnosed would have ended in catastrophe in 24 hours (and usually goes undocumented as a cause for stillbirth). After 36 hours of beta blockers, 3 specialists decided it was time for my 32-week old baby to come into this world and boy, were we relieved to hear him cry! After birth, the NICU team worked tirelessly to calm his racing heart and so far the treatment is working! There’s been a few setbacks, but overall he’s overcome so much and nurses say he’s feisty. This video was taken 48 hours after Santi was born when I got to meet him for the first time. :) Thank you to my family and friends who rushed over, drove and FLEW to take pictures of Santi when I couldn’t see him. I don’t know how I could have managed without all the visits by my bedside. ❤️
#selfcaresunday
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