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F.O.M.O., Spoon Theory, and Living with Rheumatoid Arthritis

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April 22, 2020
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Recent Writings

  • How I Manage Isolation While High Risk Covid-19.
  • The Rheumatoid Arthritis Mom preparation kit

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Thanks for coming!

Thank you for visiting my blog. I am so happy you are here! I created this blog back in 2011 on tumblr because I felt there was a need for someone to talk about how chronic illness affects not just our bodies, but our souls as well. Always remember, this is a safe space for you to vent, scream, and be yourself. :)

<3 Steph

Copyright © 2019 Stephanie Aleite. All rights reserved.

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I’m so mad at #RA right now. Well, not only right now. For a while I’ve been mad at it. . Most people who know me know I really enjoy cooking as a hobby. When quarantine started, I even started a little blog on Instagram all about it with funny food-related memes.🍋 . But lately I haven’t been cooking much and the little bit of cooking I have done has been simple, not-Instagram worthy meals.😅 . My hips and knees and feet have been killing me to stand for any length of time & my Vectra score hasn’t dropped from 46 (high disease activity) since December 2018 (right after I gave birth). Walking hurts, sitting hurts. My joints are swollen and it’s hard to sleep let along get comfortable. . So my doctor decided it’s time to start my 8th biologic.💉 Well, technically we’re going back to #4. So, for now, I’ll have to find a new hobby that I can do without sitting for too long or standing and isn’t hard on my hands. . Any suggestions?? 🥴 . . #quarantine #vectrascore #rheumatoidarthritis #arthritis #chronicpain #chronicillness #chronicmom #invisibleillness #ra #jra #ja #juvenilearthritis #autoimmunedisease #spoonie #gastroparesis #rheum #RA
Thanks @littlegreenmoppet !! Santi loves his “new-to-us” toy! . This is the best consignment store in Miami. I love #supportingsmallbusinesses & the environment by shopping this way. . My first semester in college, I was in a club called Green Architecture and since then I’ve tried my best to be a part of the solution to a healthier earth and reduce waste. . There’s no easier way than kids products! They grow out of toys, clothes, shoes, & every day items so quickly that it’s easy to breathe new life in an item discarded by an older child! . I love @littlegreenmoppet for doing their part while simultaneously keeping top quality in mind! I also love supporting local entrepreneurs! 💚♻️ . . . #momlifeisthebestlife #mysonshine #sustainability #kids #toddlersofinstagram
3•15•20 The day before Quarantine began.🏝 . As sick as I am of this quarantine, I’m going to keep going so nothing happens to me. . Before Santi was born, I was the queen of YOLO.😂 . But now that I’m a mother, I realize this temporary inconvenience is vital to the continuation of Santi, Andres, & I’s journey to make memories. . Santi needs his mama safe & let’s face it, Andres wouldn’t survive without me. 😂 Guy can only boil pasta & make a ham & cheese sandwich 🥪 I love them both so as much as I want to be OUT, I will stay home. 🏡 . . . #quarantine #vectrascore #rheumatoidarthritis #arthritis #chronicpain #chronicillness #chronicmom #invisibleillness #ra #jra #ja #juvenilearthritis #autoimmunedisease #spoonie #gastroparesis #rheum #RA #arthritisawareness #arthritisawarenessmonth #findyouryes #arthritisfoundation #jra #rheumatoidarthritisawareness #stayhome
While the rest of the world restarts life amid this global pandemic, 54 million Americans, including 300,000 children like me are preparing to continue their ​isolation in order to stay safe.😷 . Fortunately, the Arthritis Foundation has been working hard to help EXTROVERTS 😅 like me combat the loneliness and isolation of being categorized High Risk for serious complications from COVID-19 by providing life-changing information and resources, access to optimal care, and community connections. . It’s more important now than ever for people like us to be aware of the necessary precautions and resources available to stay healthy and safe.💪 . You can find up-to-date, trustworthy information and resources from the Arthritis Foundation in my Bio👆👆👆 . The Live Yes! Arthritis Network, created by the Arthritis Foundation, makes connections both in person and online to empower people to live their best life.✌️😊 . TONIGHT✨6-7pm EST @arthritis_sfl is hosting a ZOOM meeting with Holy Cross Orthopedics to answer any surgical & non-surgical questions! email bstuddard@arthritis.org for the LINK!⛓ . Who’s coming on ZOOM with me?? 😃 . . . #vectrascore #rheumatoidarthritis #arthritis #chronicpain #chronicillness #chronicmom #invisibleillness #ra #jra #ja #juvenilearthritis #autoimmunedisease #spoonie #gastroparesis #rheum #RA #arthritisawareness #arthritisawarenessmonth #findyouryes #arthritisfoundation #jra #rheumatoidarthritisawareness
Am I smiling or frowning? After 50 days in quarantine I’m really feeling the effects of isolation now. . While the rest of the world talks about restarting life amid this global pandemic, 54 million Americans, including 300,000 children like me are preparing to continue their ​isolation in order to stay safe. Luckily, the Arthritis Foundation has been working hard to help extroverts like me combat the loneliness and isolation of being categorized High Risk for serious complications from COVID-19 by providing life-changing information and resources, access to optimal care, and community connections. It’s more important now than ever for people like us to be aware of the necessary precautions and resources available to stay healthy and safe. You can find up-to-date, trustworthy information and resources from the Arthritis Foundation at the link in my bio! . . . #vectrascore #rheumatoidarthritis #arthritis #chronicpain #chronicillness #chronicmom #invisibleillness #ra #jra #ja #juvenilearthritis #autoimmunedisease #spoonie #gastroparesis #rheum #RA
My son. My world. You are so special. Every day I wake up shocked to have been so blessed. I can’t believe God chose me to be your mama. All I ever wanted was for you to be kind and empathic and you are all of that and more. You were so worth the wait.
May 2020
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RA is a part of me, but it doesn’t define me

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