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#RedefiningRA: Crescendo Bioscience

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September 23, 2017
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Happy 1-week Birthday baby Santiago! I just want to thank all my friends and family for the constant prayers. During a routine check-up, Santiago was diagnosed with a very rare fetal tachyarrythmia with a heart rate of 250-280 beats per minute—which undiagnosed would have ended in catastrophe in 24 hours (and usually goes undocumented as a cause for stillbirth). After 36 hours of beta blockers, 3 specialists decided it was time for my 32-week old baby to come into this world and boy, were we relieved to hear him cry! After birth, the NICU team worked tirelessly to calm his racing heart and so far the treatment is working! There’s been a few setbacks, but overall he’s overcome so much and nurses say he’s feisty. This video was taken 48 hours after Santi was born when I got to meet him for the first time. :) Thank you to my family and friends who rushed over, drove and FLEW to take pictures of Santi when I couldn’t see him. I don’t know how I could have managed without all the visits by my bedside. ❤️
#selfcaresunday
#latergram Can’t believe I forgot to post this picture of my mom and I after her graduation! Seeing you accomplish your dreams has taught me so much. I always knew you could do it.😊I am so unbelievably proud of you, mom! And thanks for inviting me to share in your moment of decorating your hat.🎓
Home is not where I live. It’s next to you. Under your smelly armpit.❤️
Bumpin’ at 26 weeks.
Started at my new office this week... threw up on my desk this week. Can’t get more official than that.🤢🤧📌

Thanks for coming!

Thank you for visiting my blog. I am so happy you are here! I created this blog back in 2011 on tumblr because I felt there was a need for someone to talk about how chronic illness affects not just our bodies, but our souls as well. Always remember, this is a safe space for you to vent, scream, and be yourself. :)

<3 Steph

Copyright © 2017 Stephanie Aleite. All rights reserved.

Instagram

Happy 1-week Birthday baby Santiago! I just want to thank all my friends and family for the constant prayers. During a routine check-up, Santiago was diagnosed with a very rare fetal tachyarrythmia with a heart rate of 250-280 beats per minute—which undiagnosed would have ended in catastrophe in 24 hours (and usually goes undocumented as a cause for stillbirth). After 36 hours of beta blockers, 3 specialists decided it was time for my 32-week old baby to come into this world and boy, were we relieved to hear him cry! After birth, the NICU team worked tirelessly to calm his racing heart and so far the treatment is working! There’s been a few setbacks, but overall he’s overcome so much and nurses say he’s feisty. This video was taken 48 hours after Santi was born when I got to meet him for the first time. :) Thank you to my family and friends who rushed over, drove and FLEW to take pictures of Santi when I couldn’t see him. I don’t know how I could have managed without all the visits by my bedside. ❤️
#selfcaresunday
#latergram Can’t believe I forgot to post this picture of my mom and I after her graduation! Seeing you accomplish your dreams has taught me so much. I always knew you could do it.😊I am so unbelievably proud of you, mom! And thanks for inviting me to share in your moment of decorating your hat.🎓
Home is not where I live. It’s next to you. Under your smelly armpit.❤️
Bumpin’ at 26 weeks.
Started at my new office this week... threw up on my desk this week. Can’t get more official than that.🤢🤧📌
September 2018
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RA is a part of me, but it doesn’t define me

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