Skip to content

The Young Face of Arthritis

  • Welcome
  • About
  • Blog
  • Contact Me
  • All Projects

#RedefiningRA: Crescendo Bioscience

Posted
September 23, 2017
Category
Media
Comments
0 Responses

Share this:

  • Email
  • Print

Like this:

Like Loading...

Leave a Reply Cancel reply

Fill in your details below or click an icon to log in:

Gravatar
WordPress.com Logo

You are commenting using your WordPress.com account. ( Log Out /  Change )

Google photo

You are commenting using your Google account. ( Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. ( Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. ( Log Out /  Change )

Cancel

Connecting to %s

Recent Writings

  • The Rheumatoid Arthritis Mom preparation kit
  • Guest Blogger, Joseph Faulk

Facebook

Facebook

Enter your email address to follow my blog and receive notifications of new posts!

Follow The Young Face of Arthritis on WordPress.com

Follow me on Twitter

My Tweets

Instagram

Currently going through it #rheum #rheumatoidarthritis #arthritis #chronicpain #chronicillness #autoimmunedisease
We did it!! We kept a human baby alive for a whole year! 🤣 Santiago Joyce, you are such a joy. Worth the wait. Worth the struggle. We love you so much! ❤️ Thank you @trunkdax & Tía @anaromina for the adorable overalls!😍
Andres, Santi & I on Lifetime for #rheumatoidarthritis awareness!..Sometimes I get embarrassed and wonder what people from my high school will think of me when they see I didn’t turn out perfect and beautiful and successful like them. I got a disease, I’m not done with college yet, it took me 7 years to have a kid... then I remember I’m the tortoise, not the hare and because I have to do more with less, I’m 10x more appreciative of the little things in life than they ever will be.💜💙Link in bio!👆🏼👆🏼👆🏼
#tbt to Santi on the set of Dr Phil! Airs at 3 pm! Check your local listings!!! #rheum #RA #raawareness #rheumatoidarthritis
The truth is I thought I had come to terms with being diagnosed with an incurable, progressively disfiguring disease a long time ago. I considered my RA and I off the Ferris Wheel of denial, anger, bargaining and sadness. I had moved on to acceptance! . In a wheelchair, out of a wheelchair. With a cane, without a cane. Working a job, and “disabled.” I had learned to love myself and appreciate all the facets of ME with RA on the side. The good and the bad, my RA and me had a ying and yang. YAY! . Then I became a mother. . And a newfound hatred of this piece of crap disease began brewing inside me before I even had time to recognize it or nip it in the bud. Now, it’s bubbling to the surface in surprising tears I can’t hold back. . I was warned of the postpartum RA flare, told to prepare my support system, told to come up with a treatment plan with my doctor. And I did! . I did all of that, but the one thing I forgot to do was to prepare myself. . For the disconnection between my love and longing to hold my son and my stiff elbows and painful shoulders that won’t cooperate. . I forgot to forgive myself for not being a “perfect” mother and to ask my friends and family to remind me when I forget that there is no such thing… . I forgot to tell myself that people lie on Social Media. . That commercials that say “Moms don’t take sick days” are just Marketing to sell NyQuil, not truths. . And everyone has bad days, even moms without RA. . The truth is I’m still learning. I don’t have it all figured out. With every milestone I experience and every new obstacle I face, and every year that passes with this lifelong disease *eye roll..* I come closer to finding the reason I’ve been given this rather distasteful set of cards. . But like Rafiki from Lion King says… #rheumatoidarthritis #arthritis #jra #chronicpain #chronicilness #ra #rheum #juvenilearthritis #chroniclife #jia
This guy turned 11 months two weeks ago and it’s so sad! 😭He officially looks like a toddler and acts like one too.😆

Thanks for coming!

Thank you for visiting my blog. I am so happy you are here! I created this blog back in 2011 on tumblr because I felt there was a need for someone to talk about how chronic illness affects not just our bodies, but our souls as well. Always remember, this is a safe space for you to vent, scream, and be yourself. :)

<3 Steph

Copyright © 2019 Stephanie Aleite. All rights reserved.

Instagram

Currently going through it #rheum #rheumatoidarthritis #arthritis #chronicpain #chronicillness #autoimmunedisease
We did it!! We kept a human baby alive for a whole year! 🤣 Santiago Joyce, you are such a joy. Worth the wait. Worth the struggle. We love you so much! ❤️ Thank you @trunkdax & Tía @anaromina for the adorable overalls!😍
Andres, Santi & I on Lifetime for #rheumatoidarthritis awareness!..Sometimes I get embarrassed and wonder what people from my high school will think of me when they see I didn’t turn out perfect and beautiful and successful like them. I got a disease, I’m not done with college yet, it took me 7 years to have a kid... then I remember I’m the tortoise, not the hare and because I have to do more with less, I’m 10x more appreciative of the little things in life than they ever will be.💜💙Link in bio!👆🏼👆🏼👆🏼
#tbt to Santi on the set of Dr Phil! Airs at 3 pm! Check your local listings!!! #rheum #RA #raawareness #rheumatoidarthritis
The truth is I thought I had come to terms with being diagnosed with an incurable, progressively disfiguring disease a long time ago. I considered my RA and I off the Ferris Wheel of denial, anger, bargaining and sadness. I had moved on to acceptance! . In a wheelchair, out of a wheelchair. With a cane, without a cane. Working a job, and “disabled.” I had learned to love myself and appreciate all the facets of ME with RA on the side. The good and the bad, my RA and me had a ying and yang. YAY! . Then I became a mother. . And a newfound hatred of this piece of crap disease began brewing inside me before I even had time to recognize it or nip it in the bud. Now, it’s bubbling to the surface in surprising tears I can’t hold back. . I was warned of the postpartum RA flare, told to prepare my support system, told to come up with a treatment plan with my doctor. And I did! . I did all of that, but the one thing I forgot to do was to prepare myself. . For the disconnection between my love and longing to hold my son and my stiff elbows and painful shoulders that won’t cooperate. . I forgot to forgive myself for not being a “perfect” mother and to ask my friends and family to remind me when I forget that there is no such thing… . I forgot to tell myself that people lie on Social Media. . That commercials that say “Moms don’t take sick days” are just Marketing to sell NyQuil, not truths. . And everyone has bad days, even moms without RA. . The truth is I’m still learning. I don’t have it all figured out. With every milestone I experience and every new obstacle I face, and every year that passes with this lifelong disease *eye roll..* I come closer to finding the reason I’ve been given this rather distasteful set of cards. . But like Rafiki from Lion King says… #rheumatoidarthritis #arthritis #jra #chronicpain #chronicilness #ra #rheum #juvenilearthritis #chroniclife #jia
This guy turned 11 months two weeks ago and it’s so sad! 😭He officially looks like a toddler and acts like one too.😆
September 2019
M T W T F S S
« Aug    
 1
2345678
9101112131415
16171819202122
23242526272829
30  


RA is a part of me, but it doesn’t define me

Gallery

This slideshow requires JavaScript.

Powered by WordPress.com.
  • Facebook
  • Twitter
  • Instagram
  • Blogger
  • LinkedIn
loading Cancel
Post was not sent - check your email addresses!
Email check failed, please try again
Sorry, your blog cannot share posts by email.
Cancel
%d bloggers like this: