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#RedefiningRA: Crescendo Bioscience

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September 23, 2017
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Thank you for visiting my blog. I am so happy you are here! I created this blog back in 2011 on tumblr because I felt there was a need for someone to talk about how chronic illness affects not just our bodies, but our souls as well. Always remember, this is a safe space for you to vent, scream, and be yourself. :)

<3 Steph

Copyright © 2019 Stephanie Aleite. All rights reserved.

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“Have I not commanded you? Be strong and courageous. Do not be terrified; do not be discouraged, for the Lord your God will be with you wherever you go.” ~ Joshua 1:9 . . . #highriskcovid #rheumatoidarthritis #arthritis #chronicpain #chronicillness #chronicmom #invisibleillness #ra #jra #ja #juvenilearthritis #autoimmunedisease #spoonie #gastroparesis #covid19 #corona #coronavirus
This past week was killer and after 10 days of mystery illness (docs say most likely Strep or maybe even Flu) we are finally turning a corner. . Besides being high risk for serious complications of covid-19, I think most people don’t understand what we #autoimmune patients go through every single time we get any type of bacterial or viral infection. It’s not just worse-than-average infections. It’s a longer infection and greater difficulty healing. It means stopping all meds that control the underlying health condition and a subsequent flare up of that condition. It means MORE and WORSE PAIN. . I can’t live without a suppressed immune system. I can’t sleep, can’t work, can’t walk, can’t love, can’t parent or cook or brush my hair or put on clothes or brush my teeth without a suppressed immune system. . Being on 4 immunosuppressant meds allows me to do those things, but still is not enough to allow me to run, sit in a movie theater, drive, sleep, write with a pen, stand up without difficulty, run, or live life without pain. . The point I’m making is this: Please #stayhome because even if I survive #covıd19, every minute I’m off therapy means another minute of uncontrolled #rheumatoidarthritis. . #VectraScore #highriskcovid19 #chronicpain #chronicillness #invisibleillness #autoimmunedisease #rheumatology #arthritis #gastroparesis
Happy Birthday to my better half! The best part of quarantine is watching you love being a dad and bond with Santi in such a new and special way. I love you so much, boo!
Happy Birthday to my baby cousin who turned 7 today. You are the kindest, smartest, most caring boy on the planet. You are so special!💙
Today, on World Juvenile #Arthritis Day, Santi and I are wearing green and proudly joining the @arthritisfoundation and supporting its mission to find a cure. 💚 . As a kid I never met anyone with #JuvenileArthritis like me, but strangely I assumed everyone had pain like me.😆 . Arthritis impacts 54 million Americans, including 300,000 U.S. children and thousands more around the world. . Meeting and connecting with others like me has been an INCREDIBLY validating and uplifting experience. . Today and EVERY DAY I’m grateful the @arthritisfoundation has our backs through their grassroots work and in honor of World Juvenile #Arthritis Day, I’m asking you to join me by posting a picture of yourself wearing green and include #KeepYourGreenOn and @arthritisfoundation 💚
I am immunocompromised and my life counts. #HighRiskCovid19 Tag 3 friends and let’s show the world it isn’t only the elderly!! @theseatedview @fitaimee_ra @andthenyoureatjax #VectraScore #rheumatoidarthritis #arthritis #chronicpain #chronicillness #chronicmom #invisibleillness #ra #jra #ja #juvenilearthritis #autoimmunedisease #spoonie #gastroparesis
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RA is a part of me, but it doesn’t define me

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